When you have Multiple Sclerosis (MS), there are important choices to make about your health. One big decision is picking the right medicine, called a disease-modifying therapy (DMT), to help with your MS. This page will help you understand the steps to make the best choices for your treatment.
What is a Disease-Modifying Therapy (DMT)?
A Disease-modifying therapy, or DMT, is a type of medicine that helps reduce the number of relapses. While DMTs don’t cure MS, they can make it easier to manage by reducing the amount of relapses.
How Do You Choose the Right Medicine?
Deciding on the right DMT involves talking to your consultant and MS nurse. Here’s how it works:
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Your Consultant Offers the DMT Options
Your consultant will look at your MS symptoms, the number of relapses, and your MRI scans to suggest different DMTs that might work for you. They will briefly explain the options available, but a detailed discussion about the medicines will happen with your MS nurse. -
Talking to Your MS Nurse
After your consultant offers the treatment options, you’ll have an important conversation with your MS nurse. The nurse will explain each DMT in detail, going over how it works, how it’s taken (like pills, injections, or infusions), and what the side effects might be. Your nurse will help you think about how each medicine fits into your life. -
Using the MS Decision Making Tool
Your MS nurse might suggest using the MS Trust decision-making tool. This tool helps you compare the different DMTs side by side, making it easier to see which one might be best for you. It’s a great way to feel more confident about your decision. -
Discussing Again with Your MS Nurse
Once you’ve done your research and written down your questions, you can discuss them with your MS nurse again. They will help answer your questions and make sure you’re comfortable with your choice. Your MS nurse is there to guide you and support you through the entire process. -
Getting Ready to Start Your Medicine
After you’ve decided on the right DMT, your MS nurse will take care of all the practical steps. This might include checking your blood, scheduling tests, or showing you how to take the medicine. If your DMT choice is of higher efficacy, it will need to be discussed at a multi-disciplinary team meeting before funding is granted. Your nurse will make sure everything is set up so you can start your treatment safely.
Getting Support for Your Decisions
Choosing the right treatment can feel hard, but you’re not alone. Here are some ways to get support:
- Doctors and MS Nurses: Your healthcare team is there to help you understand your options. Don’t be afraid to ask as many questions as you need.
- The MS Decision-Making Tool: This tool can help you compare your choices and feel confident about picking the right DMT. (provided by the MS Trust)
- Family and Friends: Talk to your family and friends. They can help you feel supported as you make your decision.
- Other MS Communities: Connecting with other people who have MS can also be very helpful. Online forums and local support groups can provide valuable information and encouragement. Be sure to check out websites related to MS for more resources and connections, such as those on the GMMSIN private Facebook group.
You’re in Control of Your MS Treatment
Making choices about your MS treatment can seem overwhelming, but you have a whole team to help you. By working with your consultant, MS nurse, and using tools like the MS Decision-Making Tool, you can make the best choice for your life. After that, your MS nurse will handle everything to get you started safely, like checking your blood and scheduling any tests. Remember, asking questions and taking your time when making these decisions is okay.
