If you have been diagnosed with MS (Multiple Sclerosis), it’s normal to have many questions. Here’s what happens next!
Meet Your MS Nurse
After being diagnosed by a neurologist, you will be referred to a specialist MS nurse locally.
What Does an MS Nurse Do?
An MS nurse helps you understand your condition. They provide support, answer questions, and assist with managing your symptoms, including disease-modifying therapies (if eligible) and blood monitoring. You can find out more about the MS Nurses linked to GMMSIN on our Intro to the MS Nurse service page Intro to MS nurse service – gmmsin.org.uk
Your First Appointment
You will have an appointment with your local MS nurse to discuss your diagnosis and learn more about MS.
Contacting Your MS Nurse
You will receive a contact number for your MS nurse. This is an answerphone service, so you can leave messages with questions. Your nurse will triage messages daily and get back to you as soon as they can. An email will also be provided. You can find the contact details of the MS nurse service linked to GMMSIN on How to contact your MS nurse – gmmsin.org.uk
Annual Reviews
Every year, you will have a review with your MS nurse, either over the phone or in person. These reviews help track your progress and ensure you receive the support you need.
Prep for Clinic
Sometimes clinics can feel overwhelming, and being prepared can help you make the most of your visit.
What You May Be Asked in an MS Nurse Clinic
During your appointment, the MS nurse may ask questions about:
Symptoms:
- Bladder and Bowel: Any issues with urination or bowel movements?
- Swallowing: Any trouble swallowing or chewing?
- Fatigue: Do you often feel tired or lacking energy?
- Mobility: Any difficulties with walking or balance?
- Vision: Noticed any changes in your eyesight?
- Pain or Numbness: Any unusual sensations?
- Mental Health: How have you been feeling emotionally? Do you have support from family or friends?
- Medications: What medications are you taking? Any side effects?
- Lifestyle: How is your daily life? Any activities that are difficult?
- Goals: What are your goals for managing your MS? What would you like to focus on?
Being prepared for these questions can help you get the most out of your appointment.
